In New York

In New York
Rochsmefeller

Sunday 23 February 2014

Twist and Shout

So where are we now? Well, the wound or 'stoma site' is looking great and there's minimal leakage, which is such a relief. No more stains on tee shirts. Roch is not feeling as tired and we've started to get out and about again. Last weigh-in, he'd put on a pound. Pretty good as I'd say he'd lost a few pounds over the hospital stay. Kate and I are becoming quite expert in the art of bolus feeding and gradually the kitchen has returned to something approaching normality. 

Ten to fourteen days after the procedure, it is necessary for the 'advance and rotate' ritual to take place. This is to prevent the tissue of the stomach lining from growing round the plastic plate and performs much the same function as turning an earring in a newly pierced ear. 
The 'advance and rotate' was carried out for the first time by the Nutritia nurse. Nutritia is the company who provide the feeding equipment and fortisips. Roch has another name for this ritual. he calls it 'twist and shout'. Actually, he says it didn't hurt but he felt nauseous for the rest of the afternoon. From now on, it's twist and shout once a week.

The goal has been to achieve a new normal, as we've had to do so many times before. I think we're almost there now, and although it feels like something of an achievement, don't expect me to be happy about our situation.  
I'm still dealing with my anger, remember?


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