tag:blogger.com,1999:blog-6198754766315463894.post2564126997085356026..comments2023-05-13T16:24:36.916+01:00Comments on A monkey on his back: Cars and the Monkey or 'Every Which way but the way you want it to be'Deirdrehttp://www.blogger.com/profile/12192664244507198931noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6198754766315463894.post-91789016193499883092011-02-08T16:02:14.938+00:002011-02-08T16:02:14.938+00:00Hi Roch and Deirdre
Look at my blog:-
http://dont...Hi Roch and Deirdre<br />Look at my blog:-<br /><br />http://dontgetmestarted-pollyanna.blogspot.com/<br /><br />This is set up to try to give insight to new MND sufferers who, hopefully, will benefit from my experiences.Pollyannahttps://www.blogger.com/profile/09136096794948760514noreply@blogger.comtag:blogger.com,1999:blog-6198754766315463894.post-16360357110858543802011-02-08T13:24:46.973+00:002011-02-08T13:24:46.973+00:00Well done Roch, it isn't easy to make those tr...Well done Roch, it isn't easy to make those transition. I try and think of them as victories over MND, enabling me to do something that it is trying to prevent me from doing. I try and think of my carer as a butler, getting her to do everything while I sit on my arse. Losing the ability to drive is tough, no escaping it although you do get used to it. I gave up in 2009 after my arms just couldn't turn the wheel far or fast enough. We had our wheelchair VW already but I had had other modifications made to enable me to drive it such as powered boot lid opening, lighter steering and a power step to help me in. I was able to get between the drivers seat and wheelchair through the car then operate the boot and ramp, get out, close it all up and head out. Then do the whole thing again in reverse later. but to be honest the prospect of doing all of that soon became a significant and within 3 or 4 months I couldn't drive anyway. It is the one expenditure I regret in hindsight, but illustrates the problem we all have when considering what to spend money on. You will know when its time to hang up the car keys. For me, having the offroad wheelchair cushioned the blow. If you ever want to come over to look at our setup you would be very welcomeSteve Evanshttps://www.blogger.com/profile/12401878941784113573noreply@blogger.com