tag:blogger.com,1999:blog-6198754766315463894.post8704654822794284499..comments2023-05-13T16:24:36.916+01:00Comments on A monkey on his back: A horrible timeDeirdrehttp://www.blogger.com/profile/12192664244507198931noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6198754766315463894.post-35977063521448875822013-03-14T17:25:34.659+00:002013-03-14T17:25:34.659+00:00Thanks Helen - very useful suggestion. Sorry to ha...Thanks Helen - very useful suggestion. Sorry to have missed Dispatches. How frustrating for Colin! You can never trust those media types, I'm afraid. They are pretty ruthless in pursuing their own agendas. Take care. DeirdreDeirdrehttps://www.blogger.com/profile/12192664244507198931noreply@blogger.comtag:blogger.com,1999:blog-6198754766315463894.post-41029106714737902402013-03-14T17:22:16.792+00:002013-03-14T17:22:16.792+00:00Thanks Carol - it's great to read your comment...Thanks Carol - it's great to read your comments. Sounds like we have a lot in common!<br />DeirdreDeirdrehttps://www.blogger.com/profile/12192664244507198931noreply@blogger.comtag:blogger.com,1999:blog-6198754766315463894.post-25582878687851917982013-03-08T15:28:44.520+00:002013-03-08T15:28:44.520+00:00Sorry to hear you've been poorly Deirdre but g...Sorry to hear you've been poorly Deirdre but glad you're starting to feel better.<br /><br />It's something that often lurks at the back of my mind as it's just me that cares for my husband (and the dogs!). Luckily I've managed to avoid anything worse than a cold but it brings it home that you need back up - no man is an island!<br /><br />We have a very good palliative care telephone helpline linked to the hospice, and I have been told that I should ring them if anything leaves me unable to look after Colin. Might be worth investigating if there's something similar at your local hospice.<br /><br />Take care.<br /><br />Helen x<br /><br />PS - Colin was on the Dispatches programe on Monday night, talking about palliative care in hospice. They did about 4 hours of filming and then only used 2 minutes! Obviously didn't say what they wanted to hear...Helen Knightnoreply@blogger.comtag:blogger.com,1999:blog-6198754766315463894.post-28964224062570949252013-03-07T20:29:39.725+00:002013-03-07T20:29:39.725+00:00Sorry to hear you have been ill,I'm glad you a...Sorry to hear you have been ill,I'm glad you are feeling a bit better. I am very lucky as i have been quite healthy since my husbands diagnosis. I also have a wonderful sister who would come to look after us but so far it has just been me and our 18 year old daughter who look after Jim. We have a carer starting middle of April as it is getting hard now. Jim and Roch sound at about the same stage of progression. I have been having reikki,reflexology and massage to try to keep me balanced. Take Care, I look forward to reading your blogs. xx Carolcarol webbhttps://www.blogger.com/profile/05568262514655572825noreply@blogger.com